We just have to wait and see

These are the words I have been hearing from all the doctors we have seen during this stay. We see the oncologist, this week was Dr.Onimoe. She is nice and very pregnant with twins. Then the infectious disease doctor, Dr.Ballen and our pediatric surgeon, Dr. Vegunta. They are all involved because of the Pseudomonas bacteria in her blood. Everyday they all come in and at different times of course ( though today I got smart and told them that we wanted to do it when all the doctors were present) and check the sores on her butt as well as her port because of the fluid that came out. She hates this. Her butt hurts a lot and she cries and poops and cries and poops. It's very stressful and doing it 3 times a day everyday is very exhausting. She also has a round like bruise with a pin prick center on her forearm that they are watching cause they think it could possibly be a ring worm. (Great) The bacteria she has is a serious bacteria that is resistant to many antibiotics. They have 1 smoking gun as they put it that they have placed her on a few days ago called Marapanim. This is an antibiotic that treats certain things especially the bacteria she has. We just have to wait and see if it takes care of it. They think the butt sores are also caused by this and the fact that they are draining is good thing. But one of their worries is that the bacteria has clung to the port, the foreign item in her body. Cultures on the oozing fluid from her port came back and the news isn't good. They believe it's a new bacteria that is growing in the pocket. Which is the place where they placed the port. Our only option now is to remove the port. Originally their thoughts were to wait and see what the blood cultures showed after she was on the antibiotics for 14 days. But now since there is a new bacteria we are out of options. The plan is to take the port out on Tuesday at 7:30am and then place a picc (peripherally inserted central catheter). It's similar to an iv but is surgically inserted. We must do this so that she can finish her chemo on Thursday and begin the new round next week. They will put in a new port eventually but again we just have to wait and see. Depending on what the culture shows when they take samples off of the port will decide how much longer we will be here at the hospital and how soon we can get a new port. If it is still growing a bacteria then we must continue on the antibiotics and this must be done at the hospital. We just have to wait and see. We did cut off the length of her. Unfortunately it was becoming unmanageable and was extremely matted from laying in bed all day. She looks adorable in her new bob and are preparing for when she is totally bald. Daddy also shaved his head today and we talk about cutting hers everyday to prepare her. She tells me that she will wear Gabbi's bows :)

"But they that wait upon the Lord shall renew their strength; they shall mount up with wings as eagles; they shall run, and not be weary; and they shall walk, and not faint."~ Isaiah 40:31