Hospital stay

I haven't updated because there really has been no change until 2 days ago. Bella has not been herself. She has been in a lot of pain. If its not her belly it's her butt. She has regressed back to diapers because it hurts so bad to go to the bathroom and sometimes she cant make it. It's very sad to see. Monday night we noticed what looked to be like a hemorrhoid on her anus. Tuesday morning we saw the doc. She wants surgery to come look. It could be an abscess and they may need to drain it. We see surgery later who believes no its not an abscess but may be Pseudomonas  This is the bacteria that was in her blood and the reason why we are here. They decide to change antibiotics. They put her on 3 different kinds as well as a pain med. Wednesday begins like normal. Doc comes to visit says there is no change. Today marks 7 days in the hospital. So what this means is they must change her dressing and de-access and re-access her port. She of course hates this. We go into the sterile room where she knows the "owies" happens. Surgery and the doctor are in the room when we remove the needle. She has a red legion that has been getting larger that they need to look at. The red legion looks fine, however when the took the needle out the wound was oozing. They sent a sample away for testing. They don't believe it's infected because it is not hot to the touch or red any where around it but the take a sample to be sure. After they remove the bandage and the needle, she gets to bathe without having all the bandages and stuff put on to stop it from getting wet. While doing this, she starts to go to the bathroom. I notice that there is blood in her stool. I immediately call the nurse. Yep definitely blood. Doctor comes in and takes a look at the bump on her anus. This doesn't appear to be bleeding and they need to make sure she doesn't also have an infection in her intestines. They re-access her port which was less stressful than taking it out, but still involves lots of crying. She gets to pick out a toy afterwards. We walk the halls for 2 hours not eating waiting for CT(cat scan) to come get her. Finally at 4:30 they come for her. They strap her down so she cant move and take the image. We come back upstairs where she eats and eats and eats some more. Images come back a little later and no infection (thank God). I am pretty sure I couldn't handle one more thing. She is still bleeding when she has a bowel movement and that's scary. They believe it is from the chemo which can cause mucositis. This causes sores throughout your digestive tract including your mouth and anus. It apparently is very painful. To help with the pain they also start giving her morphine when needed every 3 hours. Her hair has also started falling out. Nothing big yet. No clumps. But lots of loose strands that show on her pillow as well as when I brush it. I'm undecided on how to handle this. On one hand I don't want to cut it but it may come down to that when it starts coming out in clumps. She is officially getting used to the hospital. She doesn't wake up when they come in anymore and if she does she immediately goes back to sleep. The medicine is helping. This morning she decided to be funny and stick Cheerios up her nose. One got stuck and she had to blow it out but it was funny and felt good to laugh with her.

"We live by faith, not by sight." ~ 2 Corinthians 5:7