Sunday, September 16, 2012

Cancer sucks!

The title of this blog pretty much states everything I am feeling. Cancer sucks! And it's never gonna get any better than that. Cancer will always suck. Normal kid stuff is now non-existent. Last weekend I talked to the doctor 6 times! Seriously SIX. 3 on Saturday and 3 on Sunday. Tremors, diarrhea, fever, vomiting, pus from her bottom. Anything u can think of we pretty much had going on. But the good thing about all of this. There is a good thing you ask? Yes, we got to stay home and play!!
She made everyone wear bows :)
Daddy's little girl
Monday we visited the clinic for them to take a look at her butt and to check counts. She didn't clear for chemo so we have to hold for another week. I hate this! I want her to be in remission and its not fair that we keep having to hold chemo! I read about all these parents whose kids MRD is negative and I'm envious! Why couldn't that be us? Don't you think we've had enough going on? They sent us upstairs to another specialist (and another co-pay!) to look at her. This took over an hour to see the doctor. Both girls had fallen asleep. Bella on me and Gabbi in her stroller. First time ever Bella had fallen asleep in public. Finally we see him. He gives us a prescription and we are on our way home. Monday night she spikes yet again another fever. Same doc on call. She thinks it's from her butt and since we started antibiotics not to worry unless it continues to rise. I packed a bag, just in case. The fever dispersed! (woo!).

Chillin with Mommy before bed

Next morning more vomit, ugh! I call and talk to the nurse. They decide they want us to come back in on Wednesday and if she spikes another fever Tuesday evening then we have to come in to the ER. Thankfully no fever. We have to go Wednesday morning to access her and get a CBC as well as a few other tests. No fever so we got to leave but without counts because the machine was down. Her blood was sent to Sonora, so who knows when we will have results. Gabbi also had a check up at 2 so we rushed to that doctors office. She was good and healthy!

Don't forget my spaghetti Mom!

Thursday we had our very first play date in 3 months! Bella was in heaven! She was so excited to see her best buds Tatum and Hunter. I loved being able to visit my best friend but on the other hand it was very hard seeing her healthy kids and questioning why it happened to us and not someone else. Also the constant worry of germs is inevitable. I was constantly making everyone wash their hands. Poor kids. They all had a blast though! She was so exhausted that night she slept in her own bed for the first time since she was diagnosed. It only lasted till about 10:30 when Gabbi woke her up crying :(

Playdate!

 Friday and Saturday was full of diarrhea and many accidents. I feel so bad for her. She doesn't understand why it's happening. She has lost 1.2 pounds from last Friday to Monday. She is eating but not much. The vomiting doesn't help, nor does the diarrhea. And her hair has starting falling out again. Just lots of loose strands.
Cheese!

Today we had family photos done. She was excited to get out of the house and was stoked to hear that we weren't going to the doctor. Tonight she is back in her bed again for the 2nd time. Crossing my fingers this lasts throughout the night this time.  Back to the clinic tomorrow for hopefully chemo. I don't think I can handle another hold.

On our way to the photo shoot!




Don't forget everyone this month is childhood cancer awareness month! When choosing a foundation to donate money to, please think about one that funds finding a cure for childhood cancer! Also Bella's Run is this Friday for anyone who is interested. Please email me with any questions or see previous blog entry! Thank you to everyone who participated in the Scentsy Online fundraising party. And a big thanks to Jessica Weinland for setting it up for us!




"always giving thanks to God the Father for everything.."~Ephesians 5:19-20

1 comment:

  1. found your blog and thinking about your lil girl and family. fight strong bella. we've been in this fight since March! Saw your comment about (co -pay) - Contact me - there are organizations that can help you with them.
    facebook.com/kickinitwithcaleb
    helpcurecaleb@gmail.com

    Stay Strong Mama!
    Candice
    "Caleb's Mama" :)

    ReplyDelete